Archive for » July 2nd, 2012«

Spanking linked to increased risk of mental health problems

A child who is spanked, slapped, grabbed or shoved as a form of punishment runs a higher risk of becoming an adult who suffers from a wide range of mental and personality disorders, even when that harsh physical punishment was occasional and when the child experienced no more extreme form of violence or abuse at the hands of a parent or caregiver, says a new study.

Among adults who reported harsh physical punishment short of physical or sexual abuse, psychiatric disorders including depression, anxiety disorders, mania and drug or alcohol dependency were between 2% and 5% more common. And more complex psychiatric illnesses marked by paranoia, antisocial behavior, emotional dependency and narcissism were between 4% and 7% more likely, according to the study published in the journal Pediatrics.

The increase in mental disorders among those who were hit or physically punished as children was seen even in families where no family dysfunction or clear evidence of parental mental illness was reported, suggesting that the higher risk of psychiatric woes was not necessarily genetically inherited. Even those who reported harsh physical punishment on a “sometimes” basis were at elevated risk of developing psychiatric disease in adulthood. And boys and girls who experienced such physical punishment were equally likely to suffer mental illness as adults.

The Canadian authors of the report, which is based on data collected from nearly 35,000 adult Americans, said their findings underscore that spanking and other forms of harsh physical punishment are a matter not just of private behavior but of public health.

They concluded that the nation’s physicians should explicitly tell parents that physical punishment, including spanking, smacking and slapping, “should not be used on children of any age.”

Pediatricians would need to instruct some parents in the fundamentals of positive reinforcement and other positive parenting approaches to correcting unwanted behavior in children, the authors wrote. But discouraging harsh physical discipline — a response to child behavior practiced by close to half of American parents — could yield important payoffs, the authors wrote, concluding that “reducing physical punishment may help to decrease the prevalence of mental disorders in the general population.”

Among the adult mental illnesses most strongly linked to a history of harsh physical punishment in childhood were mania (an adult diagnosis 5.2% more likely in those who reported harsh physical punishment); alcohol abuse or dependence (3.4% more likely); and drug abuse or dependence (3% more likely).

Adults physically punished as children were even more likely to be diagnosed with personality disorders: Those who experienced such discipline were 7.2% more likely to be diagnosed as adults with schizotypal personality disorders, in which a strong pattern of odd or paranoid thinking results in job loss, relationship failures and other woes; they were 5.5% more likely to get a diagnosis of antisocial personality disorder, in which low levels of empathy and moral responsibility result in illegal behavior and hurtful relationships; they were 4.7% more likely to be diagnosed with narcissistic personality characterized by extreme egotism and self-regard; and 4.6% more likely to have a diagnosis of borderline personality disorder, in which unpredictable swings of neediness, narcissism and risk-taking often result in a string of failed relationships.

The latest study found that in all, only 6% of respondents reported they had been “pushed, grabbed, slapped, shoved or hit” by a parent or other adult in the home before the age of 18. That is far less than in another study, which reported that roughly 48% of adults said they were physically punished during childhood. The current study found that reports of harsh physical punishment were more common in African American homes than in Caucasian, Asian American or Pacific Islander households. But the researchers also found what they described as “a surprising finding”: that as an adult’s reported education and income levels increased, so did his or her likelihood of having experienced harsh physical punishment as a child.

The practice of spanking appears to be widespread in the United States, and a parent’s right to discipline a child physically — short of hits that leave bruises or worse — rarely brings legal repercussions. But in recent years, widely circulated videos of parents spanking or striking their children with repeated blows have sparked angry public debates about the practice.

The American Academy of Pediatricians already has adopted position statements that strongly oppose hitting a child for any reason. But the authors suggest that pediatricians may need to be more specific about what they oppose and more helpful in suggesting other parental strategies to induce desired child behavior.

You can read the study online here.

Return to the Booster Shots blog.


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Donations sought for livestock affected by Utah wildfires

The Utah Department of Agriculture has established a Feed the Animals account at Wells Fargo Bank to which the public may donate to assist ranchers in need of emergency feed for their livestock due to wildfires blazing throughout the state.

UDAF also has created a website at www.uearc.org where donations can be made.

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An estimated 20,000 head of sheep and cattle have had their seasonal rangelands destroyed by fire in the past week, Leonard Blackham, Utah commissioner of agriculture and food, said in a news release Monday. The fund “will help ranchers meet their short and long-term food needs,” he said.

Agriculture officials worked with the Utah Emergency Animal Response Coalition to create the fund, and said 100 percent of donations will be used to feed and care for affected animals.

UEARC is a registered charity established to care for animals during emergencies. In addition to the UDAF, members include Utah Department of Emergency Management, the Humane Society of Utah and various county animal control departments, according to the release.

Copyright 2012 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.


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Diamond Ring for Charity a Gift or a Goof Up?

A little charity could go a long way. Or be a big mistake.

A fundraiser for the Ronald McDonald House became a little more exciting when volunteers discovered a diamond ring in a stash of donated shoes.

The find occurred on June 28 when the San Diego Chapter of the children’s charity held a a city-wide fundraiser called the Red Shoe Drive. As part of the drive, volunteers position themselves throughout the city holding a replica of the famous fast-food clown’s red boots as a drop box for donations.

In emptying the boots, a volunteer discovered a gift inside the men’s size 14 red shoe that was possibly too good to be true — a diamond wedding band. The volunteer quickly alerted charity administrators.















“We often find generous items during our donation drives,” said CEO Chuck Day. “So far, we can’t tell if it was a mistake or if someone wanted to donate a ring.”

It’s believed that the ring may have simply fallen off as a donor was dropping money into the boot.

Day says that the charity has received about a dozen calls to claim the ring, but no one has come close to remotely matching the ring’s description. Many of those who called were people who had lost their symbol of everlasting love, but none could be linked to the ring.

If it’s a gift and not a mistake, Day says it wouldn’t be the first time a southern Californian dropped a such generous donation. In 2010, the first year the San Diego Ronald McDonald House held the Red Shoe drive, someone put a pair of diamond earrings in the collection box.

“Last year, someone dropped ten $100 bills,” Day said.

Donors are being urged to phone the charity if they think the ring belongs to them. The charity will hold the ring for at least six months before it is considered a donation.


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Spanking batters kids' mental health

By Barbara Bronson Gray
HealthDay Reporter

MONDAY, July 2 (HealthDay News) –
Spanking or slapping your children may increase the odds that they will develop mental health issues that plague them in adulthood, a new study suggests.

Researchers in Canada found that up to 7 percent of a range of mental health disorders were associated with physical punishment, including spanking, shoving, grabbing or hitting, during childhood.

“We’re not talking about just a tap on the bum,” said study author Tracie Afifi, an assistant professor in the department of community health sciences at the University of Manitoba, in Winnipeg.
“We were looking at people who used physical punishment as a regular means to discipline their children.”

Corporal punishment was associated with increased odds of anxiety and mood disorders, including major depression, panic disorder, post-traumatic stress disorder, agoraphobia and social phobia. Several personality disorders and alcohol and drug abuse were also linked to physical punishment, the researchers found.

“What’s really important is to know that spanking and other forms of physical punishment come at a cost,” said Afifi. “Physical punishment should not be used on children at any age under any circumstances.”

While the study finds an association between physical punishment and mental illness, it does not prove that one causes the other.

Previous studies have linked physical punishment to aggression in children, delinquency and emotional, developmental and behavioral impairment. But this study examined its effects on mental health in the absence of more severe physical abuse, sexual abuse or other forms of neglect and mistreatment.

For the study, published online July 2 in the journal Pediatrics, the researchers used 2004-2005 data on about 34,000 individuals aged 20 or older gathered from the U.S. National Epidemiologic Survey on Alcohol and Related Conditions. Participants were questioned face-to-face and asked, on a scale of “never” to “very often,” how often they were ever pushed, grabbed, shoved, slapped or hit by their parents or another adult living their home. Those who reported “sometimes” or greater were considered as having experienced harsh physical punishment.

About 6 percent of respondents were considered to have suffered harsh physical punishment. Boys, blacks and those from more educated, more affluent families were most likely to report such abuse, the researchers said.

The researchers adjusted the data to take into account socio-demographic factors and any family history of dysfunction.

Thirty-two countries prohibit physical punishment of children by parents or caregivers, but the practice is legal in the United States and Canada, according to background information in the study. The American Academy of Pediatrics strongly recommends against the use of physical punishment as a form of child discipline.

Nevertheless, the researchers say a survey of U.S. adults showed that 48 percent of respondents reported a history of harsh physical punishment without more severe abuse. A 2010 University of North Carolina study revealed that nearly 80 percent of preschool children in the United States are spanked.

Some experts support the notion that harsh discipline can negatively affect kids but express concerns about the specific implications of this new study.

“While it’s a well-done study, looking at a national data sample, there are limitations in the way the study was done,” said Dr. Andrew Adesman, chief of developmental and behavioral pediatrics at Steven and Alexandra Cohen Children’s Medical Center in New Hyde Park, N.Y. “There are limitations to relying on adults recalling childhood experiences, and it’s hard to control for familial psychopathology.”

Adesman added that while the research reinforces that there are now more good reasons not to use physical punishment, “we can’t infer that physical punishment leads to major psychological disorders.”

Still, Adesman said the public needs more education about the dangers of physical punishment to children and the alternatives that parents can effectively use.

“There’s a general presumption that parenting comes naturally, but there are things people need to learn. We have PSAs [public service announcements] about all kinds of health issues, but I’ve yet to hear any tips for providing non-physical punishment to children.”

More information

The American Academy of Pediatrics offers tips on disciplining children.

Copyright © 2012 HealthDay. All rights reserved.


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Supreme Court ruling on health care a big win for mentally ill kids

The Supreme Court’s decision to uphold the bulk of the Patient Protection and Affordable Care Act ensured greatly improved health care for children, especially those not fortunate enough to have parents with employer-provided health insurance.


The Supreme Court in Washington.
(Jacquelyn Martin – Associated Press)
My Washington Post colleague Janice D’Arcy wrote about how child advocates are praising the Supreme Court’s ruling. And there’s a lot to praise.

We could start with what the new law will do for children struggling with mental illness and substance abuse, two challenges that often go hand-in-hand.

Whereas millions of children were previously denied health insurance due to pre-existing mental health problems, the reform would give them access to quality, affordable coverage. It will also expand the age at which they can remain insured under their parents’ plan to 26. These two measures alone will enhance the mental and physical well-being of millions of American children.

As a community organizer doing juvenile justice work in the Anacostia community of Washington, D.C. in recent years, I’d often come across children with behavioral issues rooted in untreated mental illness and substance abuse.

It was heartbreaking to review case after case and find that proper medication and counseling could have prevented a lot of the young people we served from ever entering the criminal system. The systemic failure to meet their medical needs was a major contributing factor in the revolving door of delinquency and arrest that so many of them were trapped in.

Juvenile use of marijuana was at the core of this vicious cycle. Struggling with psychological trauma brought about by family dysfunction, rampant urban violence, sexual abuse, and a host of other problems, they often self-medicated with illegal drugs. Rather than being treated for substance abuse addiction, they were instead incarcerated. Medical matters would often get reduced to legal ones.

Tragically, it was not until many of them entered the criminal system that they began to receive the kind of care they needed.

While this reform stands to improve quality of life for many of them, it doesn’t come without threats to Medicaid, which greatly affects low-income communities. Hopefully, states will expand coverage to low-income families as needed and not opt out of providing coverage simply because they won’t face federal penalties.

The fact is that poverty and mental illness have historically been demonized and criminalized in this country. But it’s not a crime to be poor or mentally ill. It is, however, inhumane to doom some children to living lives crippled by mental illness and substance abuse just because they are poor. Opening paths for these children to receive help before they self-destruct or become a prison statistic will elevate the nation as a whole and improve the fabric of our future.

As author and activist Terry Tempest Williams said, “The eyes of the future are looking back at us, and they are praying for us to see beyond our own time.”

Rahiel Tesfamariam is the founder/editorial director of Urban Cusp, an online lifestyle magazine. Follow her on Twitter @RahielT
.


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Donations to Romney campaign from former Iraqi politician raise eyebrows

Mitt Romney’s campaign is raising eyebrows for accepting money from a former Iraqi politician with ties to a corrupt Chicago businessman, after Republicans slammed President Obama for taking funds from the same donor in 2008.

Aiham Alsammarae has given $4,800 to Romney’s presidential campaign since 2011, USA Today reports after reviewing Federal Election Commission records.

Alsammarae served as Iraq’s interim electricity minister under the U.S.-led Coalition Provisional Authority. He has close ties to Antoin “Tony” Rezko, a former Obama fundraiser convicted in June 2008 on charges of fraud, attempted bribery and money laundering.

BARACK OBAMA’S PAL CONVICTED

Alsammarae, who now lives in the Chicago area, helped Rezko raise bail before his trial by pledging properties he owned with his wife.

The RNC had slammed Obama from taking $2,300 from Alsammarae in 2008. Along with his ties to Rezko, Republicans had said Alsammarae was jailed for several months in Iraq on charges that he embezzled hundreds of millions of dollars as electricity minister.

Obama later donated the money he received from Alsammarae to charity.

When USA Today asked the RNC about Alsammarae’s donations to Romney, RNC spokeswoman Kirsten Kukowski responded that “Obama attacked Enron in 2008 but takes money from ex-Enron employees who profited” from the collapsed energy company.

Romney’s campaign did not respond to requests for comment, the paper said.

klee@nydailynews.com


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Internet cartoonist’s charity fundraiser turns into free speech debate

The Oatmeal

This cheeky response to a legal threat began a successful charity fundraiser, but it also led to convoluted drama.

Most of the time, I avoid calling legal fights “bizarre” or “unbelievable,” but both terms seem applicable to what is going on between cartoonist Matthew “The Oatmeal” Inman and attorney Charles Carreon.

In less than a month, a lawsuit threat was turned into a highly successful charity fundraiser which then became a legal drama so twisted that a crowd-sourcing website, two charities, one hundred individuals listed as “John Doe,” and even the California state attorney general found themselves involved.

But why does all this matter to you?

Because freedom of speech is on the line — as it often is whenever someone’s Internet activity leads to a legal mess.

Wait! How’d we get to this point?
Even though many people don’t recognize his name, 29-year-old Matthew “The Oatmeal” Inman is a popular cartoonist. You’ve probably seen plenty of his work — such as “10 Words You Need To Stop Misspelling,”  ”What It’s Like To Own An Apple Product,” or “Cat vs Internet“ — in your Facebook feed, on Twitter, or on your favorite blog at some point. It’s almost impossible to avoid Inman online.

As we explained when we intially begain covering the Carreon vs. Inman drama, the popularity of Inman’s work often prompts websites to repost it without asking or crediting him. More often than not, these websites will even profit from this practice.

About a year ago, Inman got fed up with a website — called FunnyJunk — which had become particularly prone to re-hosting and monetizing his work. He wrote a blog post declaring that FunnyJunk had “practically stolen [his] entire website.” The website’s owner responded by claiming that Inman was threatening to sue him and removing any content which referenced “The Oatmeal.”

But then at the beginning of June 2012, Inman was served with papers explaining that the owner of FunnyJunk was threatening to file a federal lawsuit unless Inman paid $20,000 in damages. He consulted a lawyer and sat on the letter for about a week before finally posting it online, along with his rebuttal and an explanation of what he’ll do

“I’ve got a better idea,” he wrote. “I’m going to try and raise $20,000 in donations. I’m going to take a photo of the raised money. I’m going to mail you that photo, along with this drawing of your mom seducing a Kodiak bear. I’m going to take the money and donate one half to the National Wildlife Federation and the other half to the American Cancer Society.”

The fundraiser was a huge success. Inman collected over $200,000 via a crowd-sourcing website called Indiegogo. The Internet cheered, but not everyone was happy.

Hell hath no fury like a lawyer scorned
Charles Carreon, who initially simply represented FunnyJunk, was definitely not happy about the entire situation. When I reached out to him on June 12, 2012, he told me that he’d removed his contact information from his website due to the large number of people who’d contacted him after Inman’s blog post went online. 

“I really did not expect that he would marshal an army of people who would besiege my website and send me a string of obscene emails,” he said.

At this point, Carreon switched gears. He filed suit on his own behalf, against Inman, the charities he was raising funds for and more. He wanted to freeze the funds and to silence the criticism of his actions.

The showdown continues
Now the battle feels as if it’s Carreon vs. Everyone Else.

The attorney is attempting to stop the distribution of the $200,000+ collected for the American Cancer Society and the National Wildlife Federation and the Electronic Frontier Foundation (EFF) — a donor-funded nonprofit organization created to defend digital rights — has teamed up with Inman’s attorney Venkat Balasubramani to fight the temporary Carreon’s demand for a temporary restraining order. 

EFF’s Kurt Opsahl broke down the situation in a blog post, describing Carreon’s initial legal threat — the one which inspired the charity fundraiser — “baseless” before proceeding to explain just how “outrageous” the attorney’s latest legal demand is:

Carreon’s claim runs contrary to the Constitution. As Carreon is well aware, freedom of speech is a cornerstone of our legal system.  Carreon wants the court to shut down Inman’s speech: a comic response to the letter.  Sorry, Charlie, the First Amendment protects Inman’s right to challenge your legal threat.

Opsahl also calls out other flaws in Carreon’s claims, but that one about constitutional rights is what matters to you — it’s the reason you should continue following this case. Should Carreon somehow succeed in his actions against Inman or any of the other individuals he’s filed suit against, we might all have to be significantly more careful about how we raise funds online and how we reply to legal threats.

Want more tech news, silly puns, or amusing links? You’ll get plenty of all three if you keep up with Rosa Golijan, the writer of this post, by following her on Twitter, subscribing to her Facebook posts, or circling her on Google+.


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Spanking Batters Kids' Mental Health: Study

MONDAY, July 2 (HealthDay News) –
Spanking or slapping your children may increase the odds that they will
develop mental health issues that plague them in adulthood, a new study
suggests.

Researchers in Canada found that up to 7 percent of a range of mental
health disorders were associated with physical punishment, including
spanking, shoving, grabbing or hitting, during childhood.

“We’re not talking about just a tap on the bum,” said study author
Tracie Afifi, an assistant professor in the department of community health
sciences at the University of Manitoba, in Winnipeg.
“We were looking at people who used physical punishment as a regular means
to discipline their children.”

Corporal punishment was associated with increased odds of anxiety and
mood disorders, including major depression, panic disorder, post-traumatic
stress disorder, agoraphobia and social phobia. Several personality
disorders and alcohol and drug abuse were also linked to physical
punishment, the researchers found.

“What’s really important is to know that spanking and other forms of
physical punishment come at a cost,” said Afifi. “Physical punishment
should not be used on children at any age under any circumstances.”

While the study finds an association between physical punishment and
mental illness, it does not prove that one causes the other.

Previous studies have linked physical punishment to aggression in
children, delinquency and emotional, developmental and behavioral
impairment. But this study examined its effects on mental health in the
absence of more severe physical abuse, sexual abuse or other forms of
neglect and mistreatment.

For the study, published online July 2 in the journal
Pediatrics, the researchers used 2004-2005 data on about 34,000
individuals aged 20 or older gathered from the U.S. National Epidemiologic
Survey on Alcohol and Related Conditions. Participants were questioned
face-to-face and asked, on a scale of “never” to “very often,” how often
they were ever pushed, grabbed, shoved, slapped or hit by their parents or
another adult living their home. Those who reported “sometimes” or greater
were considered as having experienced harsh physical punishment.

About 6 percent of respondents were considered to have suffered harsh
physical punishment. Boys, blacks and those from more educated, more
affluent families were most likely to report such abuse, the researchers
said.

The researchers adjusted the data to take into account
socio-demographic factors and any family history of dysfunction.

Thirty-two countries prohibit physical punishment of children by
parents or caregivers, but the practice is legal in the United States and
Canada, according to background information in the study. The American
Academy of Pediatrics strongly recommends against the use of physical
punishment as a form of child discipline.

Nevertheless, the researchers say a survey of U.S. adults showed that
48 percent of respondents reported a history of harsh physical punishment
without more severe abuse. A 2010 University of North Carolina study
revealed that nearly 80 percent of preschool children in the United States
are spanked.

Some experts support the notion that harsh discipline can negatively
affect kids but express concerns about the specific implications of this
new study.

“While it’s a well-done study, looking at a national data sample, there
are limitations in the way the study was done,” said Dr. Andrew Adesman,
chief of developmental and behavioral pediatrics at Steven and Alexandra
Cohen Children’s Medical Center in New Hyde Park, N.Y. “There are
limitations to relying on adults recalling childhood experiences, and it’s
hard to control for familial psychopathology.”

Adesman added that while the research reinforces that there are now
more good reasons not to use physical punishment, “we can’t infer that
physical punishment leads to major psychological disorders.”

Still, Adesman said the public needs more education about the dangers
of physical punishment to children and the alternatives that parents can
effectively use.

“There’s a general presumption that parenting comes naturally, but
there are things people need to learn. We have PSAs [public service
announcements] about all kinds of health issues, but I’ve yet to hear any
tips for providing non-physical punishment to children.”

More information

The American Academy of Pediatrics offers tips on disciplining children.


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Win for Obamacare is win for mental health

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Organ Donation Has Consequences Some Donors Aren’t Prepared For

iStockPhoto.com

Most living kidney donors return to their daily lives in a matter of weeks, but for some, unforeseen physical and financial complications arise.

Nearly a year and a half ago Jeff Moyer donated a kidney. It’s something he says changed his life forever. “Transplant surgery is a miracle,” marvels Moyer. “I mean – to think that my kidney saved someone else’s life – that’s staggeringly wonderful.”

His reaction is surprising given all he’s been through. Like most surgical patients, when Moyer awoke, he was in a lot of pain. He was reassured the post-surgical pain was normal and he’d be back on his feet again in a couple of weeks. But weeks, then months went by. His scars faded, and the pain didn’t.

Today Moyer says he has daily pain that leaves him virtually doubled over. It has affected his relationships and his ability to work. And yet doctors tell him they can find nothing wrong.

 

It’s a story familiar to Vicky Young, who donated her left kidney to a friend seven years ago, only to develop kidney disease herself.

“All of the sudden I’m plummeting down to stage III chronic kidney disease, and that scared the hell out of me,” says Young.

While Moyer and Young represent only a small fraction of donors, they do exist. These donors say they were unprepared financially and emotionally for the prospect of lifelong health problems. And they are frustrated by a transplant system that is primarily focused on the organ recipient, but isn’t prepared to care for them.

Young’s kidney function eventually improved, but like Moyer, she also suffered from chronic pain, numbness in her left leg and groin complications she says no one ever told her could happen.


Enlarge Gretchen Cuda Kroen/NPR

Jeff Moyer suffers from chronic pain, which he says began after donating a kidney a year and a half ago.

Gretchen Cuda Kroen/NPR

Jeff Moyer suffers from chronic pain, which he says began after donating a kidney a year and a half ago.

“Death, pneumonia, blood clots — that was what I was told, so I didn’t think that there would be anything else,” Young recalls. “I figured if I was in the hospital and didn’t have a blood clot, didn’t have pneumonia, and was still alive, then I was going to be fine.”

Young eventually discovered that her symptoms were a result of nerve damage during surgery, but it took her years and she estimates as much as $15,000 in out-of-pocket medical expenses to get a diagnosis.

Moyer and Young’s experiences aren’t typical. Over 100,000 people have donated a kidney to a friend, family member or stranger in the six decades since transplantation became possible. Most of them return to their daily lives in a few weeks – and have few if any complications.

“I don’t think the transplant community really respects donors as individuals that are going to be impacted by this,” explains Jeff Moyer. “We’re sort of treated like living cadavers.”

Donna Luebke is a former nurse who donated a kidney to her sister in 1994, and now works as an independent donor advocate. She says there’s no way to really know how many Jeff Moyers or Vicky Youngs there are — no one is keeping close track.

Living kidney donations have been successfully performed since the 1950s but it wasn’t until 2006 that the United Network for Organ Sharing began asking transplant centers to report on the health status of its donors. However, according to reports by the Organ Procurement and Transplant Network, on average, transplant centers have lost track of more than a third of their donors one year after their donations, two-thirds by two years. Furthermore, few centers report any laboratory results on their donors, and some centers consistently fail to report any data at all. That’s something Luebke says is unacceptable.


Enlarge Gretchen Cuda Kroen/NPR

Vicky Young, left, developed kidney disease after donating one of her kidneys to a friend seven years ago.

Gretchen Cuda Kroen/NPR

Vicky Young, left, developed kidney disease after donating one of her kidneys to a friend seven years ago.

“I think that, as donors taking this risk, we deserve the highest scientific standard and that means data — and they don’t have data,” says Luebke. “I’m sort of tired of hearing that donors are fine. You can’t tell us that, because you don’t know.”

Some argue that many donors simply don’t return the forms — and that the cost of tracking down all their donors and maintaining their records is prohibitively expensive. But critics say they can and should do better.

Lainie Friedman Ross, a physician and professor of bioethics at the University of Chicago, has been outspoken about the need for a similar national comprehensive registry kidney donors.

“I think it should be morally required,” says Ross.

Ross says the consequences of organ donation might not be apparent for decades — and the risks are not the same for everyone. Young, or minority donors have a higher rate of kidney failure than the general population.

Additionally, transplant centers are increasingly willing to accept donors that are older, obese, or have high blood pressure. And while Ross says that doesn’t necessarily mean they shouldn’t be donors, getting long-term data can help answer questions about how these donors will fare.

“We need to be able give more particular information to living donors. It’s not just ‘on average’ two out of 1000 go into kidney failure, it’s what is my risk as a potential kidney donor,” says Ross.

The Living Organ Donor Network has proposed a solution: an insurance policy that also tracks donor health. The policy costs a one-time fee of $550 and has been around for over 12 years — yet few donors know about it.

Thomas McCune, a kidney specialist who directs the program, says only six of approximately 260 transplant programs currently cover all their donors with the insurance policy, in part because drawing attention to the small but real risks of donation might scare people away.

“Transplant programs are comfortable with the idea that well — we’ve never had this problem before, or it’s so rare that we don’t really have to worry about it, when in fact every single donor who walks into a transplant center needs to worry about these potential complications, including the possibility that they could die. It’s very rare — thank God. It hasn’t happened that often. But it has happened,” says McCune.

Case in point: the kidney donor and young mother who died on the operating table last month at New York’s Montefiore Medical Center after her aorta was accidentally severed during surgery.

Surprisingly, almost every donor asked — even donors with complications, like Jeff Moyer — say they have no regrets. They simply want to make the system better.

“It’s among the most important things I have ever done in my life,” Moyer says. “And I would do it again.”


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