Archive for » February 13th, 2012«

Don’t Attempt to Make Mental Illness a Laughing Matter

For nearly 40 years mental illness has been a predominating issue for my family.

My one and only beautiful and loving daughter became ill at a very early age with a life-long incurable mental illness known as schizophrenia.

In the beginning, all of the attempts that I made to find a quick cure proved fruitless.

Subsequently, her care and treatment was managed locally and she lived at home with the family. As time went on the severity of the illness worsened to a point where it became impossible for her to remain living at home. At that point in time she became a patient at the century-old Weston Hospital for the mentally ill.

Visiting her there proved to be difficult and upsetting. The building itself was in disrepair in numerous ways and treatment for her illness was primarily custodial since she and many of the other patients were treatment resistant to the medications available at that time. Living arrangements were crude and left much to be desired. The thought of leaving my beautiful daughter to live there in such dire circumstances was unbearable. Attempts to bring her home from this dreadful existence would not be successful and her confinement there continued for many years.

Eventually, newer medications became available and my daughter and many other patients were discharged back to their communities since downsizing was the order of the day even though she and some the others were not really well enough to take care of themselves and make it on their own. But this is a story for another time!

Finally, the William R. Sharpe Jr. Hospital, which would be located nearby, replaced the century-old Weston Hospital. It provides excellent state-of-the-art treatment for the mentally ill but within a short time the increasing demand for treatment would exceed its ability to provide service for all who needed it; a situation that still prevails today.

My memories of Weston Hospital are painful and depressing. The crude amenities and living arrangements that patients experienced there were deplorable at best. My daughter and family have put this unpleasant memory behind us and look to the future for a cure for mental illness.

These memories are shared not to elicit sympathy, but rather to contrast my recollections of the historic Weston Hospital to the atmosphere that exists there today. I was shocked and dismayed as I read the recent article in the Sunday News-Register, written by Vicki Smith of The Associated Press, about the former Weston Hospital that, in my opinion, brings to light a circus-like atmosphere that demeans the memory of all the patients who were ever confined there.

The renamed “Trans-Allegheny Lunatic Asylum”and trails called “Psycho Path” and events such as “Kooky Christmas” are a personal insult to former patients and their families just as much as the “N” word is offensive to the African-American community and the word “RETARD” is offensive to the intellectually disabled family advocates.

In a crude attempt at humor, T-Shirts are being marketed, advertised on their website, depicting a cartoon character wearing a strait jacket on the front with a caption “I went nuts at —–” and on the back of the shirt the name “Trans-Allegheny Lunatic Asylum” with a drawing of the facility. Also on the shirt are reasons for admission October 22,1864 to December 12, 1889 listing sexual derangement, self abuse, masturbation for 30 years, nymphomania, immoral life, bad company, laziness, worms, deranged masturbation, parents were cousins plus 10 more ridiculous assertions that are more than outrageous. In my opinion this the most deplorable example of arrogant bad taste that I have encountered in all the years that I have been an advocate for the mentally ill.

Every citizen of West Virginia should be revolted by the poor choice of marketing tactics used to promote business at the former Weston Hospital.

The Lewis County Convention and Visitors Center and the Weston business community in general should be ashamed to co-sponsor a business that admittedly is unconcerned about the objections of mental health advocates who oppose the promotional tactics that are considered stigmatizing to the mentally ill. The Weston community should demand that this business clean up its act and get in step with the rest of the nation in realizes mental illness is no laughing matter.

Individuals interested in this subject are invited to attend the next NAMI meeting, Feb. 28

Information is available by calling 304-242-6587 or 304-547-5222

Guest columnist McCloskey is an advocate for the mentally ill and a member of the National Alliance on Mental Illness of Greater Wheeling.


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CredoMobile reverses stance, sets up super PAC

CredoMobile, a San Francisco phone company, has donated $75 million to liberal causes since 1985. For the past two years, it has led protests against the Supreme Court decision that paved the way for independent political campaign groups, known as super PACs, to accept unlimited donations from corporations and individuals.

The company, along with other liberals and President Obama, worried that the high court’s decision would “open the floodgates for unlimited amounts of corporate money to flow into our political system,” as it says on its website.

So what did Credo do recently, at the urging of its members? It formed the Credo Super PAC.

In a reversal mirroring the Obama administration’s recent encouragement to supporters to contribute to super PACs that back the president, Credo felt it couldn’t “unilaterally disarm,” said political director Becky Bond.

After watching conservative super PACs lead Republicans to take control of the House in 2010, Credo asked its members last summer whether they wanted to form a super PAC. More than 85 percent did.

The move makes more sense for some analysts, who estimate that conservative super PACs could raise $500 million this year. “If we decided to sit this out and be purists on this thing, it wouldn’t change a thing other than help the other side,” said Bond, who will run Credo’s super PAC.

Plan to end ‘Tea Party Ten’

Credo expects to raise $3 million to defeat what it calls “The Tea Party Ten” – 10 House members from across the nation, most of them freshmen who represent districts that Obama won in 2008.

Unlike other deep-pocketed super PACs, Credo won’t use its donations on expensive TV advertising, spending the money instead on building a grassroots campaign, opening offices and hiring staffers in each of the targeted districts.

Since its creation on Dec. 8, Credo’s committee had raised $567,690 through Friday, according to Federal Election Commission figures. By comparison, Restore Our Future, the super PAC that supports GOP presidential candidate Mitt Romney, has raised $30 million.

Political reality sets in

After watching how super PACs influenced Republican presidential primaries this year by funding hard-hitting – and frequently inaccurate – TV advertising, Obama campaign manager Jim Messina wrote to supporters last week that “the stakes are too important to play by two different sets of rules. If we fail to act, we concede this election to a small group of powerful people intent on removing the President at any cost.”

That is a far cry from what Obama said about Citizens United in his 2010 State of the Union speech: “I don’t think American elections should be bankrolled by America’s most powerful interests.”

But analysts predict more opponents of Citizens United will be following Credo’s lead.

“Just like the president, when push came to shove, principle goes out the window when political reality sets in,” said Ellen Miller, executive director of the Sunlight Foundation, a nonpartisan organization that analyzes the role of money in politics.

“Even for people who are inherently partisan, and who understand what the issues are with unlimited money in politics, to not get involved would be like cutting off your nose to spite your face,” Miller added. “There is an arms race mentality to this.”

Focus on small donors

The Credo super PAC will be different from other super PACs in key ways. Instead of relying on wealthy donors – such as Newt Gingrich’s super-PAC patron Sheldon Adelson, the casino magnate whose family has contributed $10 million in support of Gingrich – Credo’s super PAC will focus on small donors. So far, the average contribution from its 20,000 donors has been $20, Bond said.

While super PACs have as long as three months to reveal their donors, Credo promises greater transparency. On its website, the super PAC promises to “disclose every expenditure, and the source of every donation over $200.”

It hopes to become a home for progressives who want to aim for the initial list of Tea Party targets, which includes GOP freshmen Reps. Chip Cravaack of Minnesota, Sean Duffy of Wisconsin, Frank Guinta of New Hampshire, Joe Walsh of Illinois and Allen West of Florida. It also includes Rep. Steve King, R-Iowa, a five-term congressman who is facing re-election in a newly drawn district that is not as conservative. Credo also will likely add a California race to its target list.

“We’re going to let them go out there and be progressive,” Bond said. “They’re not going to have to use some kind of focus-tested message for independent voters.”

Joe Garofoli is a San Francisco Chronicle political writer. jgarofoli@sfchronicle.com

This article appeared on page A – 1 of the San Francisco Chronicle


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Local Charity to Hold Father-Daughter Dance

On February 25th, girls in grades K-8 are invited to don their party dresses, take the arm of a special man in their lives, and head for the Mendenhall Inn for the Hearts Hands Father-Daughter Charity Ball to benefit Family Service of Chester County.

The Ball is more than just a dance – it’s a lesson in charitable service wrapped up in a celebration of family bonds. Throughout the evening, the guests will learn about the importance of local philanthropy and service, what different charities are doing to help strengthen the Chester County community, and how families can get involved with hands-on service projects. Representatives from five local charities will talk about the work they do and how young people can help.

The educational program for the evening also includes an age-appropriate slideshow to give the guests an idea of both why and how they can help out in their local community. For more inspiration, guests will hear from Heather Way, a senior at Oxford Area High School who is the recipient of the 2012 Hearts Hands Youth Community Service Award. After dinner, the guests will be treated to a performance by the Rustin Dance Team, and then DJ Mickey G will get things moving on the dance floor.

Last year marked the beginning of the Hearts Hands Ball and over 150 guests attended, raising more than $25,000 for Family Service. Family Service of Chester County provides critical support services to individuals and families, regardless of ability to pay. For more information and to purchase tickets, please visit www.familyservice.us/hearts.


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About 200 protest cuts to mental health and addiction services

Protestors walked from the Manatee Glens agency on 6th Avenue West to downtown Bradenton where they lined both sides of Manatee Avenue West. They held signs saying protesting the cuts with slogans such as “Help us Senator Bennett,” a reference to state Sen. Mike Bennett, R-Bradenton. Many passing drivers honked their car horns in support.

One budget proposed by the Florida Senate would cut funding for addiction treatments by almost $40 million and reduce funding for adult mental health treatment by almost $85 million. That equates to an overall cut in funding of 32 percent that would drastically reduce the services agencies could offer, said Manatee Glens President Mary Ruiz. The budget proposed by the State House has less severe cuts.

Ruiz said the cuts would leave many patients without help, leaving hospitals and law enforcement agencies to deal with addicts and mentally ill people when treatment is a preferred consequence.

“The cuts come as the state is dealing with a prescription pain pill epidemic” and increased mental illness from the stress of the economic downturn, Ruiz said.

“Emergency rooms will be overrun – it will be chaos,” Ruiz said. “This is not the time to cut treatment.”

Florida already ranks last among the 50 states in per-capita mental health treatment funding, according to the Florida Council for Community Mental Health, a statewide association of mental health and addiction agencies.

Among the protestors was Army veteran Jake Still, who served two stints in Iraq and said he now serves the community in his job as a case management workers with Manatee Glens.

“We’re going to overflow the jail,” Still said of the cuts.


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DSS Launches Mental Health Kiosk for More Personalized Care in Behavioral …

JUNO BEACH, Fla., Feb 13, 2012 (BUSINESS WIRE) –
DSS,
Inc., the leading provider of software development and support of
VistA, today announced a new Mental Health (MH) Kiosk solution that
allows behavioral health hospitals to capture clinical information and
foundational psychological evaluations directly from patients during
check-in.

The MH Kiosk serves as a second phase in DSS’ efforts to develop
customized EHR software that addresses the distinctive note-taking and
interdisciplinary treatment needs of behavioral healthcare providers.
This new solution is a complement to the existing DSS Mental Health
Suite, an EHR module, which is implemented nationally in all 152 of the
Department of Veterans Affairs’ Medical Centers and in several large
mental health hospital systems.

“We envision an integrated behavioral healthcare system that ensures the
utmost in patient safety and personalized care from the moment someone
walks in the door,” said Mark Byers, president and CEO of DSS. “The MH
Kiosk offers patients a private, simplified approach to providing
personal information before they see their doctor — a logical next step
in our efforts to support integrated behavioral healthcare.”

The MH Kiosk provides native and customizable features that were
designed specifically to assist patients that have physical hardships,
cognitive disabilities and limited literacy — for an overall improved
patient experience. Features include:


Touch-screen guidance and audio capabilities, allowing patients to
easily complete clinical data “paperwork” upon arrival to an
appointment;


On-the-spot behavioral self-assessments, offering patients an instant
analysis of the data and printed educational materials to review; and


Administrative management of the kiosk that gives the controller the
ability to select the most appropriate assessments for each patient.

The entire process is electronic, automatically capturing and
transferring all collected data to the patient’s digital record. The
software integrates seamlessly with the VA’s VistA/CPRS systems and
vxVistA. The information is then available in real-time to providers,
helping to guide more personalized exams and discussions.

To learn more about the Mental Health Kiosk and view a demonstration,
visit
http://dssinc.com/mh_kiosk.html .

About DSS

Document Storage Systems, Inc. (DSS) develops and supplies integrated
enhancements to the Veterans Affairs VistA system and specializes in
healthcare IT solutions that improve quality and productivity. The
organization also designs applications that are compatible with the
Indian Health Services RPMS and the Department of Defense’s healthcare
systems.

To foster the adoption of open source in healthcare organizations, DSS
is a founder and supporter of a community-driven, collaboration
environment Web site,
www.vxVistA.org
that acts as a forum for discussion and best practices among open source
vxVistA and VistA EHR users internationally. For more information on
DSS, Inc., visit
www.dssinc.com .

SOURCE: DSS, Inc.


        For DSS, Inc.
        Dodge Communications
        Leslie Kirk, 770-576-2576
        lkirk@dodgecommunications.com

Copyright Business Wire 2012

Comtex


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Foundations matching charitable donations on Valentine’s Day

Talk about it

    On Valentine’s Day, Midwesterners can show a little extra love to local charities and have donations of $10 or more matched by Dakota Medical Foundation and Impact Foundation.

    Giving Hearts Day is a 24-hour online fundraising event that matches donations to selected charities in North Dakota and Minnesota up to $4,000.

    Five of the 140 charities participating in the fifth annual Giving Hearts Day have their headquarters in Jamestown or the surrounding communities, and many others, such as the American Red Cross, include local branches — such as the Buffalo Valley Chapter of the American Red Cross.

    “Fargo was the only (Red Cross) location last year that was part of the Giving Hearts,” said NaDean Schroeder, regional communications officer and development coordinator for the American Red Cross. “We’re really excited to have this more regional opportunity for fundraising.”

    This year, funds from Giving Hearts Day could be funneled to Jamestown, as well as three other Red Cross branches serving all of North Dakota and part of Minnesota.

    “It’s a collaborative effort across the board,” said Beth DeWald, executive director of the Buffalo Valley Chapter.

    There are plenty of other incentives to get people giving. The top seven online fundraisers will receive $20,000 to $1,500 extra, depending on how they place.

    There will also be a few $500 incentive grants given to the nonprofit with donations from the most cities in North Dakota, the nonprofit that receives donations from the most U.S. states and the nonprofit that uses the most creative and effective marketing strategy for Giving Hearts Day.

    In addition, the donor who makes the largest donation will get to choose a nonprofit to receive an additional grant, and the donor who contributes to the most nonprofits will, too.

    The Impact Foundation is a nonprofit organization located in Fargo, and works with other nonprofits to provide them technical assistance, fundraising training, strategic and organizational planning and board and leadership training, said Jennifer Thompson, its director of development.

    In previous years, donations reached $3 million, with an additional $1.2 million given as matches.

    “It’s an easy way to give. It just requires a minimum donation of $10. People do not have to leave their house, because this is an online-only fundraising event,” Thompson said. “It’s just an easy way to help a lot of nonprofits continue the work they do.”

    To contribute to Giving Hearts Day, visit www.impactgiveback.org on Valentine’s Day and donate to the participating nonprofit of your choice.

    Sun reporter Kari Lucin can be reached at 701-952-8453

    or by email at klucin@jamestownsun.com

    Area nonprofits to benefit

    Nonprofits with headquarters in the area include:

    Anne Carlsen Center, Jamestown

    Cooperstown Medical Center Foundation,

    Cooperstown

    Elks Camp Grassick, Dawson

    Family Voices of North Dakota, Edgeley

    FARRMS, Medina

    Tags:
    local news, north dakota, news, charity


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    Military Charity the Boot Campaign Announces Their 100% Give Back Boot

    TYLER, Texas, Feb. 13, 2012 /PRNewswire via COMTEX/ –
    Today, national charity the Boot Campaign announced their new 100% Give Back Boot. The limited edition boot retails at $100 with a 100% of the proceeds going to charity – a first for the organization. These boots join the current offerings of more than a dozen different styles of give back combat boots, each with a $50 donation to charity. The campaign provides an easy and tangible way for Americans to show appreciation for troops, both past and present, raise awareness of the challenges they face upon return from duty and donate funds to charities supporting their transition home.

    The 100% Give Back Boot was made possible thanks to an initial donation by Bates Footwear with a value of $360,000 for the Boot Campaign and their charity partners, with the potential for even more support in the future. The sturdy duo-toned boots are similar to the boot worn by the US Marine Corps, but with a stitching modification that does not meet the very high standards for combat.

    Sherri Reuland, Executive Director of the Boot Campaign, says, “The 100% Give Back Boots are stitches away from being combat ready, and provide a feel and fit that exceed even our discerning taste in rugged footwear. The 100% Give Back Boot does not have the Boot Campaign brand on the heel, but they do have a likeness of the Marine Corps logo for die-hard military supporters!”

    The Boot Campaign is a 501c3 non-profit, non-partisan grassroots military appreciation and veteran awareness campaign started by five women from Texas, known as the Boot Girls. The Boot Girls launched the Boot Campaign in 2009 to spread awareness of the needs of military personnel returning home from combat and express gratitude to current military. Through the sale of military combat boots, the Boot Campaign donates proceeds to a group of partner charities that work with soldiers healing from a variety of physical and emotional combat wounds, embodying the campaign motto that, “When They Come Back, We Give Back.”

    www.BootCampaign.com

    Lace up a pair of your own 100% Give Back Boots while they last:
    www.BootCampaign.com/SHOP

    SOURCE Boot Campaign

    Copyright (C) 2012 PR Newswire. All rights reserved

    Comtex


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    DSS Launches Mental Health Kiosk for More Personalized Care in Behavioral Health Settings

    JUNO BEACH, Fla.–(BUSINESS WIRE)–

    DSS,
    Inc.
    , the leading provider of software development and support of
    VistA, today announced a new Mental Health (MH) Kiosk solution that
    allows behavioral health hospitals to capture clinical information and
    foundational psychological evaluations directly from patients during
    check-in.

    The MH Kiosk serves as a second phase in DSS’ efforts to develop
    customized EHR software that addresses the distinctive note-taking and
    interdisciplinary treatment needs of behavioral healthcare providers.
    This new solution is a complement to the existing DSS Mental Health
    Suite, an EHR module, which is implemented nationally in all 152 of the
    Department of Veterans Affairs’ Medical Centers and in several large
    mental health hospital systems.

    “We envision an integrated behavioral healthcare system that ensures the
    utmost in patient safety and personalized care from the moment someone
    walks in the door,” said Mark Byers, president and CEO of DSS. “The MH
    Kiosk offers patients a private, simplified approach to providing
    personal information before they see their doctor — a logical next step
    in our efforts to support integrated behavioral healthcare.”

    The MH Kiosk provides native and customizable features that were
    designed specifically to assist patients that have physical hardships,
    cognitive disabilities and limited literacy — for an overall improved
    patient experience. Features include:

    • Touch-screen guidance and audio capabilities, allowing patients to
      easily complete clinical data “paperwork” upon arrival to an
      appointment;
    • On-the-spot behavioral self-assessments, offering patients an instant
      analysis of the data and printed educational materials to review; and
    • Administrative management of the kiosk that gives the controller the
      ability to select the most appropriate assessments for each patient.

    The entire process is electronic, automatically capturing and
    transferring all collected data to the patient’s digital record. The
    software integrates seamlessly with the VA’s VistA/CPRS systems and
    vxVistA. The information is then available in real-time to providers,
    helping to guide more personalized exams and discussions.

    To learn more about the Mental Health Kiosk and view a demonstration,
    visit http://dssinc.com/mh_kiosk.html.

    About DSS

    Document Storage Systems, Inc. (DSS) develops and supplies integrated
    enhancements to the Veterans Affairs VistA system and specializes in
    healthcare IT solutions that improve quality and productivity. The
    organization also designs applications that are compatible with the
    Indian Health Services RPMS and the Department of Defense’s healthcare
    systems.

    To foster the adoption of open source in healthcare organizations, DSS
    is a founder and supporter of a community-driven, collaboration
    environment Web site, www.vxVistA.org
    that acts as a forum for discussion and best practices among open source
    vxVistA and VistA EHR users internationally. For more information on
    DSS, Inc., visit www.dssinc.com.

    For DSS, Inc.
    Dodge Communications
    Leslie Kirk, 770-576-2576
    lkirk@dodgecommunications.com


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    Sacramento County aims mental health effort at hard-to-reach groups

    Psychologists across the country have grappled for years with a thorny problem: While every demographic group has mental health problems, certain groups tend not to seek treatment.

    Now, Sacramento County is using an infusion of state cash to try to close that gap locally.

    The county Department of Health and Human Services has contracted community agencies across the county – one for each of eight specific ethnic or age groups – to evaluate what mental health services those groups need and what obstacles block them from getting help.

    In the next 30 months, those agencies will use the evaluation results to try to build programs that better meet those needs.

    The initiative also includes a “warm line,” a phone number established several months ago that people can call when they need support or information but aren’t necessarily in crisis.

    While the immediate goal is to get more residents the treatment they need, the county ultimately aims to reduce the number who attempt or commit suicide.

    “We really want to provide choices for people, so that they will feel comfortable accessing our services in the way that they feel is appropriate for them, their family and their community,” said Jo Ann Johnson, cultural competence and ethnic services manager for the county’s behavioral health services.

    The initiative will cost $1.6 million this fiscal year and a similar amount in years to come, all from the state Mental Health Services Act. California voters approved the law in 2004 to enhance services through a 1 percent tax on personal income over $1 million.

    The Sacramento effort targets groups that data show tend not to either seek or stick with treatment: Latinos; Hmong, Vietnamese and Cantonese speakers; Slavic and Russian-speaking residents; youths transitioning from adolescence to early adulthood; older adults; African Americans; American Indians; and college-age youths.

    The county offers outpatient counseling and inpatient care for residents who have major psychological disorders, such as schizophrenia or severe depression, and have Medi-Cal or no medical insurance.

    In 2009, only about 6.4 percent of the residents eligible for Medi-Cal used the county’s mental health services.

    That percentage plummeted to 3.9 for Hispanics, 3.5 for Asians, and 3.4 for people age 60 and older. County officials suspect many more needed help but didn’t seek it.

    The local rates of mental health care for Asians, Indians, blacks, whites, and seniors fall well below the average for other large California counties.

    Suicide rates themselves aren’t the reason for the new county program. Data from the National Institutes of Mental Health indicate that suicide is substantially less frequent among blacks, Latinos and Asians – around 5 or 6 suicides per 100,000 people – than among whites, whose rate is over 13.

    American Indians and Alaska natives have the highest rates of all, at more than 14 suicides per 100,000.

    Sacramento County is targeting suicide prevention, Johnson said, because in planning sessions for how to spend state MHSA dollars, community members ranked it as a major concern.

    County officials believe the disparities in care stem from the fact that, in mental health services, one size does not fit all.

    “The mental health system historically has been developed on a European model of treatment,” Johnson said. “We find that that model doesn’t always work well with cultural, racial and ethic groups, because of differences in beliefs and experiences.”

    African Americans, for instance, tend to cycle in and out of treatment quickly, which Johnson believes is because the services don’t satisfy them.

    So in the African American community, the county’s contractors are working to launch a program of “kitchen table talks,” where family members and neighbors gather to eat and talk with a counselor about issues of concern.

    “For some groups, that’s much more natural and comfortable than coming to your local mental health agency,” said Johnson.

    There are other cultural barriers. For example, whereas U.S. clinicians naturally focus counseling on the individual, people who come from more collectivist cultures may need treatment that involves the patient’s family and community, said Nolan Zane, a psychologist and chair of Asian American Studies at Davis.

    Research has consistently shown that Asian Americans “drastically underutilize” mental health services, he added. Negative views of mental illness are prevalent in many Asian cultures, both in Asia and the United States, and that can make it feel shameful for people to admit they’re distressed and need help, Zane said.

    Also, mental illness may look different in people from different cultures, said Zane.

    While Western medicine tends to see mental and physical disorders separately, East Asian cultures view health holistically. So people from those cultures tend to express their psychological problems more through physical symptoms such as pain and fatigue, Zane said.

    Those variations may make it harder to spot mental illness in certain groups of people, he added. And even if they get into treatment, cultural divides could make them feel that Western-style counseling isn’t helping them.

    If a patient complains of a headache and the doctor responds, “Do you think the headache is due to the fight you had with your husband?” Zane explained, “That’s a reason why they may leave treatment early or politely stop coming.”

    © Copyright The Sacramento Bee. All rights reserved.


    Call The Bee’s Grace Rubenstein, (916) 321-1270.

    • Read more articles by Grace Rubenstein


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    BMA calls for fresh debate on rate of organ donation

    Organ donor cardOrgan donations have risen in recent years but are still outstripped by demand for transplants

    Society should have a fresh debate on organ donation, says a new report by the British Medical Association.

    The number of organ donations has increased sharply in recent years but still lags a long way behind the number of people waiting for a transplant.

    The BMA says new types of donors may need to be considered, like brain dead patients kept alive on ventilators.

    And it calls for an opt-out donation system, where people are presumed to have agreed to donate their organs.

    The Welsh Government is planning to publish a draft Bill introducing an opt out system by the summer of 2012.

    The BMA report was examining the changes to the organ donation system that have taken place since the publication of the last major investigation by the government-appointed Organ Donation Taskforce in January 2008.

    The latest figures show that over the past three years donation rates have improved by 25% compared to 2007/08.

    NHS Blood and Transplant, the body responsible for the supply of donated organs, estimates that figure could rise to 34% by April 2012.

    But that will still be some way off the target of 50% by 2013 set by the Organ Donation Taskforce.

    Still dying

    The BMA points out that, even if that figure were to be achieved, people on transplant waiting lists would still be dying because of a shortage of donated organs.

    Dr Vivienne Nathanson, one of the authors of the report, says as a society we need to decide if this is a situation that we will tolerate or whether we should look at new methods of encouraging donation.

    “These could include an opt-out system, whether we should include higher risk donors or pressing for more intensive care beds in the NHS,” she said.

    “There could also be legislative options like the possibility to electively ventilate someone – not to benefit their own health but to make them a better donor.”

    Other areas suggested in the report by the BMA’s medical ethics committee include “increasing organ donation from emergency departments, extending the use of living donors, increasing referrals, attempting to reduce the relative refusal rate and targeted campaigns for black and ethnic minority groups”.

    The BMA itself backs what Dr Nathanson describes as a “soft” opt-in, which presumes donation had been agreed but would allow bereaved families to say no.

    But the report says other options could include “mandated choice”, where all adults are forced decide whether they want to become an organ donor; “reciprocity”, where those who donate organs, or sign up to donate after their death, receive priority should they themselves require a transplant; or some form of incentive or compensation for donors, for example paying for organs or covering funeral expenses.

    Dr Paul Murphy, a consultant in intensive care and Clinical Lead for Organ Donation at NHS Blood and Transplant welcomed the report: “Any initiative that encourages people to think and talk about the importance of organ donation helps to change attitudes and ensures that donation is seen as a routine part of end of life care in the UK.

    “We are optimistic that we will achieve the Taskforce’s predicted 50% increase by 2013 but acknowledge that this will be tough and all parts of the donation process will need to work to their full potential for us to deliver this goal.

    “We will focus over the next year on removing the barriers that currently lead 43% of UK families to refuse organ donation because they don’t know what their relatives’ wishes were.

    “We will also be seeking to enhance the rate of donation from Emergency Departments where the potential is significant but where, as yet, relatively small numbers of donors are being identified.

    In Wales the situation with regards to adopting an opt out system for organ donation is a lot more advanced than in England.

    A consultation period on the proposals outlined in the Welsh Government’s white paper ended last month. The Welsh government have said a bill would be introduced in 2012. Legislation could be in place by 2013 and a soft opt-out system could come into effect in 2015.

    Wales will become the first place in the UK to adopt the opt out system.

    Spain has the highest donation rate in the world, at around 34-35 donors per million population, compared with 16 in the UK.

    While it is technically an opt-out system – where consent is presumed – in practice it operates on more of an opt-in model, where consent is sought from the family of the deceased person.

    But the report points to some significant differences in organisation and clinical practice, such as a higher number of intensive care beds in Spain and the use of ‘higher risk donors’.

    In 2009, 45% of Spanish donors were over 60 years of age, compared with 30% in the UK.

    Have you been affected by the issues raised in this story? Please send your comments to the BBC using the form below:


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